CoCo's Corner

  Well, the day has come and gone.  I got my new and fancy attachment coming out of my face.  It was a horrible experience.  I thought I was going to go absolutely insane and take out the people putting it in me.  But, let's talk about it real quick. I got an NJ tube.  I thought I was going to be getting an NG tube.  What is an NJ tube?  It's a tube for feeding that is placed through the nose and snaked down past the stomach and into the jejunal.  The jejunal is in the small intestine.  The nasojejunal tube is more complex and has a few more risks than the nasogastric tube.  But, apparently, it's the best choice for me.   So let's talk about the actual procedure.  I knew from the beginning, when they squirted lidocaine in my two nostrils to kind of deaden it that it was going to be COMPLETELY horrible!!!  And then needed me to sniff it down to kind of deaden my throat, to make the tube a little more comfortable g...

  It is a never-ending cycle.   People thinking I do not eat, and that if I did, all my issues would be solved.  All my issues would be corrected.  That I'm just doing this to myself, because I refuse to eat.  Nothing could be further from the truth.  I may not eat what many people do.  Not as many calories, because I really have the smallest of pouches, so I get full faster.  My meals tend to be cut into smaller and more frequent.  For example, I have first breakfast.  I have second breakfast.  I have lunch.  I have midafternoon meal.  I have dinner. Then a snack a while before bed.  And finally, I take a snack to bed with me.   My gastric surgeon told me, that when I get my NG tube, I will need to keep an intricate diary of my food, to see what I am taking in.  What I am eating.  And how many calories.  So, I did a practice run and by the end of the day, I was around 1450 calories....

Sun wasn't even up when I headed to the hospital Today, I had my first albumin infusion.  I have it at the Cancer Center.  It lasts about four hours.  They get an IV started and slowly infuse the albumin.  Today, I learned a lot: Don't take your own snacks.  They have great snacks and beverages.  And you don't have to haul all that stuff. Four hours, sitting in a little curtained room, is really not bad.  I snoozed, I snacked, I watched TV, I played on my phone. Make sure you take your power pack. If they ask you if you want a heated blanket, the answer is always YES.  I had three by the time I left.  I told the adorable CNA fella that I planned to just look like a pile of blankets by the time I was ready to leave. In October, we wear Halloween fare The side effects are headaches and achy muscles.  I'm the lucky one that gets both.  I'm doing ok tonight.  I don't get headaches, I'm used to achy muscles.  I limit my intake ...

I am exhausted.  Physically.  Mentally.  Is there anything else??  Because I'm sure that is exhausted, too. I went to the doctor today.  I knew it was going to be a lot of information.  I had made a list.  I had my notebook.  I printed out all of the information from my emergency room visit on Saturday to take with me.  Blood tests.  CT Scan.  Urine test.  Plus, I brought my CT scan from March, because I noticed on it that I have a small umbilical hernia.  I was ready.  And I knew what I needed to fight for. I also came armed with gifts.  I love this doctor and his medical assistant so much.  I took them a gift of tortilla chips and homemade salsa.  And I wrote a love note on the bag.  That is how much I appreciate him.  They both loved it.  It even made Hayley get a little weepy, cuz she was having a bad day. I gave him all of my documents, and he went through the blood tests and such fr...

 Defnition: Purpura - noun - the appearance of purple or red spots on the skin and mucous membranes caused by bleeding underneath the skin due to small blood vessels bursting.  These spots can range in size from small dots (petechiae) to larger patches (ecchymosis or bruises) and may indicate underlying health issues.   Sadly, when people see my arms, I get many responses and questions.   From how are you doing?  How are you feeling?  OR what is up with your arms???  My BFF literally said, what the hell is wrong with your arms?? Like I had been out in the parking lot bruising myself up intentionally.  And we had just talked about it a couple of weeks before when she saw it. Are they pretty??  No.  But, they truly are the way I know the status of my health.  Between seeing this stuff show up on my arms and my overall general state of strength lets me know if I should be concerned.   Right now, my arms are actually look...

  I kind of referred to Ted and my "effing burger" saga that turned into a full-on tradition for us on a Facebook/Instagram post.  I added that if anyone wanted to hear the story, let me know, because I love this story.  A couple of people said they wanted to hear it - so I'm sharing. It was my 50th birthday.  It was a pretty significant birthday.  Now, in all honesty, a couple of people had gone against my express wishes and planned a whole surprise birthday party with family, friends and all sorts of people.  The funny thing was the person who was behind the whole thing had planned one for her mother a couple of months before.  She told me the story, and I said, I would kick your ass.  I'd be so mad!!!  Yeah, she took it as a challenge.  I had planned out a day of dinner out and the Muppet Movie at the dollar theater and I was excited to spend that time with my family.  When Ted started driving the wrong direction, I knew there we...